Deaf - HIV/AIDS and Disability Global Survey

Facts & Figures, Disability & HIV

Findings from
Global Survey

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Global Health Division,
Yale School of
Public Health
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Deaf

Articles by Title

	HIV and AIDS Among the Deaf
	HIV/STD Prevention for Deaf and Hearing Impaired Young Persons in Hochiminh City Deaf Club: A Seed Project
	Silence= Deaf?

Resources

	Annotated Bibliography of Published Research on HIV/AIDS Among the Deaf and Hard-of-Hearing
	Introduction to sexuality education for individuals who are deaf-blind and significantly developmentally disabled Kate Moss and Robbie Blaha (English)
	Me HIV+... What Do? A Guide for Deaf People Living with HIV Disease (English)
	NADH program review material (Nepalese)
	Remarkable Conversations: A Guide to Developing Meaningful Communication with Children and Young Adults who are Deafblind Miles Barbara and Riggio Marianne(English)

Links to Articles

	HIV and AIDS Among the Deaf (link to Kluwer Online Journals) Stefan G. Kennedy, and Christine L. Buckholz. Sexuality and Disability, 13(2):145-158, 1995. This article warns against the homogenization of the deaf community stressing the various differences within the larger deaf community. The authors also draw attention to the issues of sexuality and the high risk to infection and access to care created due to deafness. This is a good introductory source for anyone looking for information on fundamental issues on sexuality and HIV risk in the deaf community.
	HIV/STD Prevention for Deaf and Hearing Impaired Young Persons in Hochiminh City Deaf Club: A Seed Project Pearl S. Buck International Vietnam A well documented study from Vietnam including baseline and post-project evaluation, this seed project uses an interesting blend of peer educators and the innovative use of an educational contest to test knowledge on HIV/AIDS for the deaf youth members of the club. The candid section on strengths and weaknesses at the end is an insightful resource for anyone seeking information on the challenges of working with the deaf and hearing impaired.
	Silence=Deaf? Steve Freiss This article uses a narrative approach to explore the barriers to seeking information on HIV/AIDS for the hearing impaired. The author raises some important concerns about American Sign Language and its inherent difference from spoken English; functional literacy and health care access. The article emphasizes the need to recognize the deaf community as a risk group that must be catered to.

Resources

Annotated Bibliography of Published Research on HIV/AIDS Among the Deaf and Hard-of-Hearing

This is a comprehensive list of studies and abstracts on "population-based research" on HIV/AIDS among the deaf population, compiled by the CDC National AIDS Hotline. The studies have been categorized under surveys, deaf culture and policy/training.

Click here to link to the file: PDF

Introduction to sexuality education for individuals who are deaf-blind and significantly developmentally disabled
Kate Moss and Robbie Blaha (English)

Published in September 2001, this book is a comprehensive overview of sex education covering topics like modesty, sexual health care, masturbation, touch boundaries etc. Aimed at parents and providers of deaf-blind children, it is well suited for a developed country audience. Although, it does not specifically mention HIV/AIDS, it provides a good discussion on many relevant issues for people designing HIV intervention programs. It also includes a good reference section at the end.

Click here to link to the file: PDF

Me HIV+... What Do? A Guide for Deaf People Living with HIV Disease
(English)

Produced by the AIDS services of Austin, Texas, this guide is aimed at deaf individuals living with HIV. It includes sections on taking care of your health after being infected, and medication, as well as women's health and how to deal with your emotions after being diagnosed. Several sections such as insurance and social support services will be more relevant to individuals in developed countries. However, overall a good straightforward source of information that can be used in both developing and developed countries.

Click here to link to the file: PDF

NADH program review material
(Nepalese)

Created with support from FHI and USAID, the National Association for Deaf and Hearing Impaired, Nepal, this is a teaching aid and manual (flipchart) for use in the field. Each illustrated page contains a "closed caption section" containing Nepalese sign language drawings. It includes methods of transmission of HIV, condom use and primary prevention. Graphics are explicit and could be used for AIDS education for all adult groups.

Currently awaiting permission to post on our website.

Remarkable Conversations: A Guide to Developing Meaningful Communication with Children and Young Adults who are Deafblind
Miles Barbara and Riggio Marianne (English)

A comprehensive book designed by teachers, working with the deaf-blind, for teachers. While there's nothing specifically on HIV/AIDS, it can be an excellent resource for those working with deaf-blind individuals. It has detailed chapters on communication - a critical and essential skill needed while talking about sex and HIV/AIDS with children and adolescents. Also recommended for parents of deaf-blind children and advocacy organizations. While designed for deaf-blind individuals, much of the information in this book is appropriate for establishing communication between parents and children who are deaf or blind or intellectually disabled.

Click here to link to the website:
Perkins School for the Blind: Remarkable Conversations