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HIV/AIDS and Disability Global Survey. World Bank.
HIV/AIDS and Disability Global Survey.


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Research

General Disabilitiy Articles by Title

Adolescent Psychiatric Inpatients: Alcohol Use and HIV Risk-Taking Behavior
AIDS Knowledge, Attitudes, and Risk Behavior Among People with Serious Mental Illness
An Approach to Supported Housing for People with Mental Illness and HIV Disease
Developing an AIDS Prevention Education Program for Personas With Developmental Disabilities
Health-Risk Behaviors and Protective Factors Among Adolescents With Mobility Impairments and Learning and Emotional Disabilities
HIV and AIDS Among the Deaf
HIV and Psychiatric Clients with Developmental Disability
HIV and TB Among People Who are Homeless and Mentally Ill
HIV/AIDS and CBR
HIV/AIDS and People With Disability
HIV/AIDS Prevention: A Model for Educating the Inpatient Psychiatric Population
HIV Disease: Implications for Special Educators
HIV-Risk Assessment for Psychiatric Rehabilitation Clientele: Implications for Community-Based Services
HIV/STD Prevention for Deaf and Hearing Impaired Young Persons in Hochiminh City Deaf Club: A Seed Project
How Far to Gay? The Politics of HIV in Learning Disability
Ourselves, Our Bodies, Our Relatives: An HIV Prevention Intervention for Women With Severe Mental Illness
Rape of Individuals with Disability: AIDS and the Folk Belief of Virgin Cleansing
Sexuality and People with Intellectual Disabilities: A Historical Perspective
Silence= Deaf?
Study on Reproductive Health and HIV/AIDS Among Persons with Disabilities in Kampala, Katakwi, and Rakai Districts
The Sexual Experience of Men with Learning Disabilities Having Sex with Men – Issues for HIV Prevention
Too Few to Worry About? or Too Many to Ignore?: The Exclusion of People with Disabilities from HIV Programmes in India. Final Report.





 
Links to Articles
Rape of Individuals with Disability: AIDS and the Folk Belief of Virgin Cleansing. Nora Groce, Reshma Trasi. © The Lancet, 2004;363(9422):1664.

Adolescent Psychiatric Inpatients: Alcohol Use and HIV Risk-Taking Behavior John F. Aruffo, Anita Gottlieb. © Psychiatric Rehabilitation Journal, 17(4):150-156, 1994.
The authors report a strong connection between increased risk taking behavior and risk of contracting HIV among adolescents hospitalized for emotional problems. The study examines the association between knowledge of AIDS, tolerance to people with AIDS and Locus of Control (LOC) - the perception that one has the ability to control one's life. It recommends that prevention programs for adolescents should address all high-risk behavior that have a bearing on sexual activity - like alcohol and drug use.

AIDS Knowledge, Attitudes, and Risk Behavior Among People with Serious Mental Illness Jim A. Cates, Gary R. Bond. © Psychiatric Rehabilitation Journal, 17(4):19-29, 1994.
This study compares the knowledge, attitudes and risk behaviors of a group of individuals with serious mental illness with that of a community sample. The authors report no difference in knowledge and awareness between the two groups, but find that people with serious mental illness have a higher perception of risk and a lower level of self-efficacy where taking protective measures is concerned.
An Approach to Supported Housing for People with Mental Illness and HIV Disease Daniel J. Curley. © Psychiatric Rehabilitation Journal, 17(4):105-114, 1994.
This article presents a case study of integrating health care provision for people living with HIV/AIDS into a community-based independent living program for people with mental illness. This "psychosocial rehabilitation approach" is focused on developing a home and a sense of "community" for this specific group.
Developing an AIDS Prevention Education Program for Personas With Developmental Disabilities
Raymond Jacobs, Perry Samowitz, Joel M. Levy, and Philip H. Levy. Mental Retardation, 27(4):233-237, 1989.
This article discusses the Health Belief model as a foundation for creating AIDS prevention programs. It also explores some fundamental principles of education programs for persons with developmental disabilities. A prototype program is presented at the end.
Health-Risk Behaviors and Protective Factors Among Adolescents With Mobility Impairments and Learning and Emotional Disabilities
Robert W. Blum, M.D., Ph.D., Anne Kelly, M.D., M.P.H., and Margorie Ireland, Ph.D. Reprinted from the Journal of Adolescent Health. 28(6):481-490 © 2001 with permission from The Society for Adolescent Medicine. http://www.sciencedirect.com/science/journal/1054139X
This study provides a summary of the risk factors and protective factors for health outcomes in three disabled adolescent groups - adolescents with mobility impairment, learning disabilities and emotional disabilities. The study expands on the factors that create high and diminished risk as well as protect adolescents with disabilities from negative health outcomes. It provides a comprehensive discussion of behavioral scales, providing a good starting point for anyone interested in studying risk factors affecting individuals with disabilities.
HIV and AIDS Among the Deaf (link to Kluwer Online Journals) Stefan G. Kennedy, and Christine L. Buckholz. Sexuality and Disability, 13(2):145-158, 1995.
This article warns against the homogenization of the deaf community stressing the various differences within the larger deaf community. The authors also draw attention to the issues of sexuality and the high risk to infection and access to care created due to deafness. This is a good introductory source for anyone looking for information on fundamental issues on sexuality and HIV risk in the deaf community.

HIV and Psychiatric Clients with Developmental Disability Joe Alford, John F. Aruffo. © Psychiatric Rehabilitation Journal, 17(4):41-49, 1994.
This study presents the findings from a survey aimed at mental health care providers that work with "dually diagnosed" psychiatric patients suffering from developmental disability diagnosed with HIV. The study discusses provider perception of client risk and provides several recommendations to help set up programs to cater to this underserved population.
HIV and TB Among People Who are Homeless and Mentally Ill Paul Colson, Ezra Susser. © Psychiatric Rehabilitation Journal, 17(4):157-160, 1994.
This article discusses the approach used by the Critical Time Intervention (CTI) Program in New York City to improve compliance and adherence to TB medication for homeless, mentally ill men placed in shelters. This model uses a "community surrogate" in addition to the CTI case manager to improve treatment completion rates in this incarcerated population. It recommends the application of the approach for HIV-positive patients as well.
HIV/AIDS and CBR
Nganwa, A., Batesaki, B., and Balaba, A.
This paper, from Uganda, raises some crucial questions about the vulnerability of individuals with disability to HIV/AIDS in sub-Saharan Africa, especially with respect to the extremes in social responses - Overprotection v/s abuse of individuals with disability. Other issues addressed include access to information and treatment, social status and concerns for women with disabilities. The study recommends combining Community based Rehabilitation (CBR) and HIV/AIDS training. The authors theorize that CBR will benefit from the sexual education and information that HIV/AIDS training provides and HIV/AIDS training will be challenged to address the needs of individuals with disability.
HIV/AIDS and People With Disability
Nora Ellen Groce. The Lancet, vol. 361, April 26, 2003, p. 1401-1402.
HIV/AIDS Prevention: A Model for Educating the Inpatient Psychiatric Population
Frederic B. Tate, Ph.D., L.P.C., and Dan A. Longo, Ph.D. AIDS Patient Care and STD's. Volume 14, Number 6,325-331, 2000. Mary Ann Liebert, Inc.
While emphasizing the high risk for HIV amongst the psychiatric inpatient clients, this article recommends some practical tips and approaches, within a model, aimed at this particular target group. It might help answer some key questions for individuals or organizations interested in working with this particular group or seeking to design a behavioral intervention.
HIV Disease: Implications for Special Educators M. A. Prater and L. A. Serna. Remedial & Special Education, 16(2): 68-78, © 1995.
This is a useful article for school teachers and special educators working with students who are infected with HIV. It highlights the need to create a safe and supportive environment for children with special needs and addresses issues like "who should teach students about HIV?" and "format and content of HIV Education". Although the article is relevant to the USA, it provides considerations that have universal applicability.
HIV-Risk Assessment for Psychiatric Rehabilitation Clientele: Implications for Community-Based Services Judith A. Cook, Lisa Razzano. © Psychiatric Rehabilitation Journal, 17(4):105-114, 1994.
This study was conducted in a community-based psychiatric rehabilitation program in the US with the objective of assessing the prevalence of HIV risk factors in the population. It addresses the sensitive issue of "who should be tested?" for HIV. In this sub-population, HIV-related services need to be carefully monitored due to possible interactions between anti-retroviral therapy and psychiatric medication. The paper recommends that agencies must be prepared to carry out HIV risk assessment and management along with independent living services.

HIV/STD Prevention for Deaf and Hearing Impaired Young Persons in Hochiminh City Deaf Club: A Seed Project
Pearl S. Buck International Vietnam - " A well documented study from Vietnam including baseline and post-project evaluation, this seed project uses an interesting blend of peer educators and the innovative use of an educational contest to test knowledge on HIV/AIDS for the deaf youth members of the club. The candid section on strengths and weaknesses at the end is an insightful resource for anyone seeking information on the challenges of working with the deaf and hearing impaired.
How Far to Gay? The Politics of HIV in Learning Disability Paul Cambridge. Disability & Society, Vol. 12, No. 3, 1997. pp. 427-453. http://www.tandf.co.uk.
The author argues the need for advocates and HIV /AIDS educators to be aware that some individuals with learning disabilities maybe homosexual, rather than heterosexual. This must be taken into consideration when designing intervention programs for people with learning disabilities. This study stresses several issues like tailoring the content of programs to men with learning disability who have sex with men, creating an integrative approach to organizational response to sexuality and HIV and prioritization of services within a "multi-agency approach".
Ourselves, Our Bodies, Our Relatives: An HIV Prevention Intervention for Women With Severe Mental Illness (.pdf at Journal of Urban Health articles)
Pamela Y. Collins, Pamela A. Geller, Sutherland Miller, Patricia Toro, and Ezra S. Susser. Journal of Urban Health: Bulletin of the New York Academy of Medicine, 78(1):162-175, 2001.
This study introduces an innovative model - a talk show!- for a behavioral intervention addressing HIV prevention for a group of women with severe psychiatric illness. It demonstrates the effectiveness of a prevention program that includes correct usage of a female condom. While this "talk show" intervention is designed and evaluated for women with mental health concerns, the model may be applicable to other populations within the disability community.

Sexuality and People with Intellectual Disabilities: A Historical Perspective (link to Kluwer Online Journals)
Winifred Kempton, M.S.W., A.C.S.W., and Emily Kahn, M.Ed. Sexuality and Disability, 9(2):93-111, 1991.
This article is a good resource for anyone interested in the chronological development of theories and approaches to people with intellectual disabilities since the 18th century. The authors note that while we've come a long way since institutionalization and mass sterilization of individuals with intellectual disabilities, more work is needed in the field of policies and organizational responses to intellectual disabilities. The discussion provides a solid background for advocates and others who want some background for broader discussions and advocacy on issues of sexuality and rights of individuals with disability.

Silence=Deaf?
Steve Freiss
This article uses a narrative approach to explore the barriers to seeking information on HIV/AIDS for the hearing impaired. The author raises some important concerns about American Sign Language and its inherent difference from spoken English; functional literacy and health care access. The article emphasizes the need to recognize the deaf community as a risk group that must be catered to.
Study on Reproductive Health and HIV/AIDS Among Persons with Disabilities in Kampala, Katakwi, and Rakai Districts
Innocent Najjumba Mulindwa, Ph.D.
Commissioned by the Disabled Women's Network and Resource Organization (DWNRO) with support from Action Aid, Uganda, this comprehensive study looks at the knowledge, attitude and behavior for a series of variables. Some of the important ones addressed include sexual behavior and condom use, sexually transmitted diseases and HIV/AIDS and health services. This study is an excellent resource for anyone looking for qualitative and/or quantitative information on people with disabilities in Uganda.
The Sexual Experience of Men with Learning Disabilities Having Sex with Men – Issues for HIV Prevention (link to Kluwer Online Journals)
David Thompson. Sexuality and Disability, 12(3):221-242, 1994.
This qualitative study interviews men, with learning disabilities, who "cottage" (have sex with men in public spaces) and discusses their perceptions of risk and sexuality. It also emphasizes the importance of safer sex practices and the difficulties, for men with learning disabilities, in negotiating these practices.
Too Few to Worry About? or Too Many to Ignore?: The Exclusion of People with Disabilities from HIV Programmes in India. Final Report.
Kevan Moll. PMO - DFID, 2007.
This report is the culmination of an eight month research project by the Indian Programme Management Office on behalf of the Department for International Development (PMO-DFID) in 2007. Based upon meetings with 60 organisations working on disability, 40 with HIV programmes and individual interviews with 350 people with disabilities across 14 states, the report discusses why the HIV sector needs to make its programmes and services accessible to, and inclusive of, people with disabilities. The report highlights the inaccessibility of current HIV programmes, services and information campaigns in India and the resulting low levels of HIV awareness. This lack of awareness means that people with disabilities are vulnerable to HIV, and that the modes of transmission are the same as the non-disabled population. It is estimated that there are approximately 320,000 people with disabilities living with HIV in India today, but very few of these are accessing care or support services. The report concludes that although people with disabilities are not a high risk group, some people with disabilities engage in high risk behaviour, and calls for more research.

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